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Harrison’s Life with Duchenne Muscular Dystrophy on Instagram: "Living with Duchenne means living with an unspoken clock. Life expectancy isn’t an abstract statistic in our world - it’s a quiet presence is in every decision, every plan, every hope we hold carefully. Bodies affected by Duchenne are fragile in ways you can’t always see. Muscles weaken. Breathing takes effort. Hearts work harder for longer than they should have to. What looks like “normal” from the outside is often balanced on a kn
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I have Duchenne muscular dystrophy and I have already exceeded my life expectancy.
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Raising a child with Duchenne Muscular Dystrophy means living in a world that never stops shifting beneath your feet. You’ve pressed pause on parts of your own life, rebuilt routines more times than you can count, and learned to navigate medical and support systems most people never even hear about. You’ve weathered transition: new equipment, new specialists, new stages of progression, and somehow you just keep showing up. You learn, you adjust, you make the tough calls with a mix of love, fear,
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